Sachin Jain and John Rother’s JAMA commentary, “Are Patients Knights, Knaves, or Pawns?” is an article that begs to be shared. The first time I read it I had to stand up, I was so excited — how can I design a survey to capture these questions?! was my first thought. My second thought was how soon can I post this online and get the debate rolling?
— Associate Director Susannah Fox, quoted in a recent piece on questionable social media statistics.
by Susannah Fox
For many years I have kept a personal archive of every health-related survey question the Pew Internet Project has fielded, dating back to our first health survey in 2000. I have shared it with colleagues and fellow researchers, but realized today that of course I should just post it online.
Download the PDF: Pew Internet health surveys 2000-10
If you would like a Word version, I am happy to send it to you via email (sfox [at] pewinternet.org).
Please note: this document contains only the questions, in the order and form they were asked in our phone surveys, not the results or the insights we gleaned. For survey data (the actual results) please visit the Data Tools section of our site, particularly to explore survey questions or to download data. Or read any of the 24 reports we have published on the internet’s impact on health and health care.
As always, I am interested to hear from you. Please send questions, comments, or suggestions via email or Twitter.
by Susannah Fox
To me, there are two types of breaking news in health care: the macro and the micro.
Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs”). I read up on the facts and try to make sense of the latest turn of events, but usually from a comfortable distance.
Micro health news breaks when a loved one gets a serious diagnosis. Then I follow the unfolding health care story with intensity and I care more about the outcome.
Nancy Shute of NPR pulled off a nice trick when she reported on how one online community swarmed to the rescue of a woman who was recently diagnosed with a rare condition. The story grabbed my attention with micro intensity but was able to make a macro point: “Web Communities Help Patients With Rare Diseases.” By the end of it, it mattered to me that one woman’s kidney was saved thanks to a Facebook group. I bet it mattered to a lot of listeners, not just because it was a good story, but because it resonates with their own experiences. Pew Internet’s research shows that 1 in 4 internet users living with chronic disease go online to find other people with similar health concerns. The report Peer-to-peer Healthcare also chronicled how those connections can make all the difference in the world, especially among people living with rare disease.